Parathyroid

Parathyroid

Called in a received my lab and sestamibi scan results from the doctors office’s lab line.  My serum calcium and parathyroid hormone levels are still elevated.  My sestamibi scan revealed nothing.   Dr. Selvaggi wants to see me again in 3 months.  At least we’re not rushing straight to exploratory chest surgery.  I’m not going under the knife until we know exactly where that thing is.

I’m going to call the lab that did my scans and request that they’re sent to me.  I may not be able to read them, but I want to see the images myself.

- Woke up a little late
- Got out the door a little late
- Forgot I had to buy gas
- Got to work a little late
- A strap on my sandal broke when I walked into the building *sigh*
- Lost track of time and left for my sestamibi scan when I was supposed to be having the scan done

All before 10.

I had a hard time staying still during the second scan session today. I know lying on a narrow plastic isn’t ideal for comfort, I don’t usually have any problems with being still throughout the whole scan. Maybe I was just frustrated from my less than spectacular morning.

I saw Dr. Selvaggi (my endocrinologist) today.  It went pretty much as expected.  Dr. Purkert wrote her a very long letter telling her everything about my surgery and his recommendations.  Basically, I get to have another Setamibi scan.  Yaay – I love lying in a hospital gown while a big mechanical circle whirls around me!

This time, they’re going to scan my neck and chest to see if they can find the thing.  I’ve got my scan next Friday and I’m crossing my fingers and toes!

So I had my surgery yesterday. I’m feeling okay for a girl with a two inch cut across the the bottom of her neck, and I’m home from the hospital, wearing clothes and everything. Hospital gowns have their place, but I was glad to put on some pants. I am also happy to report that I can eat again! More or less. Let me tell you, chicken broth never tasted so good as it did last night. Since I experienced zero anesthesia related nausea, they gave me a cheddar cheese omelette and oat bran for breakfast! Chad is currently taking the day off and running around in the cold getting me things like my percocet prescription and chicken noodle soup from Whole Foods.

Unfortunately, the surgery was not a resounding success because my problematic parathyroid is a ninja. It’s hiding somewhere in my body, possibly in my chest. Since Dr. Purkert was not going to go poking around in my chest looking for it when he had no idea where to start, they closed me up after 2 and a half hours of looking and sent me to recovery.

Dr. Purkert is going to work with my endocrinologist (Dr. Nina Selvaggi) and the nuclear imaging and radiology people on locating the ninja. I’ll probably get another scan before I leave for Israel, but there won’t be any additional talk of surgery until they find the Ninja Parathyroid. He is probably very well trained and very good at hiding in plain sight. Just like me. What’s that? You doubt my ninja powers. Then tell me this, can you see me NOW? No, I didn’t think so – and since it’s been more than 12 hours since my last vanilla ice cream and percocet sundae, you can’t say that this is ‘the drugs’ talking.

Anyway, I’ve got a kind of creepy looking wound that is all bound up with this clear sealant, so you can SEE the CUT. It looks like I went to a Halloween store and bought some fake wound stuff, except it’s real, and kinda cool looking. I am not allowed to drive until I can move my head freely (which I currently cannot), and I cannot drive when I’m on painkillers (which I will be back on once Chad gets home with them). I will very likely be useless on Saturday for the move, but we’ll see. Now I think I’ll go watch some anime. Hooray!

2 for Dr. Purkert

I’ve gotten 2 fantastic endorsements for Dr. Purkert from nurses – which makes me feel so much better.

The first came from a Sur La Table customer who came in to pick up his knives on Tuesday night. He had put down an @inova.org email address, and he was wearing an RN badge, so I asked him which Inova he worked at. He works at the Fairfax Inova (where I’ll have my surgery), so I mentioned that I’d be having surgery there next month. When he asked which surgeon I’d be working with, I told him Dr. Purkert, and and he said that Dr. Purkert is the best surgeon there, and the only one he’d want to work on him. So hooray!

The second endorsement is from my friend’s sister, who used to be a nurse in the O.R. at the Fairfax Inova. Dr. Purkert is her favorite surgeon. She said that he is not only careful and thorough but also respectful to the nurses. The latter statement does not apply to many of the surgeon’s there, so I’m glad I have Dr. Purkert as my surgeon.

February 13

I finally spoke with my surgeon’s scheduler today.  The first day he has available to do my surgery is February 13. That’s a Wednesday.  So I’ll probably take off that Wed-Fri from work.   I wish I could get it over with sooner, but there’s nothing I can really do about it.  *blah*

So, I had a visit with my surgeon today.

yay: Dr. Purkert was very nice, explained everything to me, and noticed that I had done my parathyroid research so I knew what he was talking about.

yay: I’ll get a call tomorrow to schedule my surgery – which will probably be early January.

BOO: Since my sestamibi scan didn’t show the tumorous parathyroid, I’ll need a bilateral neck exploration to find the problem parathyroid – which means a two inch incision, slightly longer surgery and an overnight stay at the hospital.

yay: I’m getting another sestamibi scan to see if they can check it this time – my previous one is over a year old.

yay: If they find it this time, I get to have the shorter surgery and go home that night.

yay: My scan is on Tuesday – the sooner this is done, the better.

rrr:  The main danger in the surgery is if my bad parathyroid is one of the low ones – this means it’s near a nerve that connects to my vocal chords.  Dr. Purkert explained that if it’s one of the low ones, they find the nerve first, then make sure to steer clear of it.

yay: Someone brought them cookies and they gave me one!  Yay for yummy gingerbread.  :D

Blood

I’m tired of having my blood drawn.  My veins are hard to find, so the nurses have to hit the exact same spot if they’re going to reach a vein.

Every time I go to the doctors office they want my blood.  Since it’s been a year since I had my sestamibi scan, the endocrinologist wanted to test my parathyroid hormone levels again.  Just to be sure.  She referred me to a good general surgeon who’s very close by.  So I need to make an appointment with him to talk.  My sestamibi scan didn’t find the overgrown parathyroid, so he might have to just open me up and take a look inside.  Bah.  Blah.  I just want to get this over with.

I’ll back up a bit for those of you who don’t know what I’m talking about.  I have hyperparathyroidism.  You can read all about it here: www.Parathyroid.com.